This page contains useful links and downloads for clinical professionals.
Log in to the CARE-MND platform
CARE-MND platform (password protected)
Downloadable resources
MND Register
- CARE MND Register-invite-letter-Patient Information Sheet-V1.0 [Dec 2021; MS Word]
- CARE MND Registration and Consent Form V1.0 [Dec 2021; MS Word]
Tissue banking / post mortem donation
- Scottish Regenerative Neurology Tissue Bank Participant Information Sheet v2.0 [May 2020; MS Word]
- Scottish Regenerative Neurology Tissue Bank Consent Form V2.1 [June 2020; MS Word]
- Post Mortem Brain and Spinal Cord Donation: MND Participant Information Leaflet (Version 2, 16th July 2021) [PDF, 739KB]
- MND Generic Pre-mortem Consent for Brain Donation (with capacity) Version 2, 16th July 2021 [PDF, 725KB]
About MND
Clinical guidelines
- UK MND Clinical Studies Group MIROCALS Statement [May 2025; PDF 62KB]
- MND Scotland: A Problem Solving Approach for General Practitioners & Allied Health Professionals (3rd edition, 2019)
- MND Advanced Clinical Nurse Specialist Pillars of Practice Competencies – Band 7 (v1.0 Nov 2019) [PDF, 330KB]
- Position Statement regarding Edaravone June 2018 (Scottish MND Steering Committee) [MS Word 20KB]
- NICE guideline: Motor Neurone Disease Assessment & Management [Feb 2016; PDF 190KB]
- National Clinical Guideline Centre: Motor neurone disease: assessment and management [Full guideline; Feb 2016; PDF 3.9MB]
- National Clinical Guideline Centre: Motor neurone disease: assessment and management [Appendices; Feb 2016; PDF 5.6MB]
- BMJ Best Practice: Amyotrophic Lateral Sclerosis
- Managing dysphagia in MND MND Association. This information sheet provides suggestions, medication options and practical tips for health and social care professionals working with people with MND with swallowing problems [last revised March 2022]
- Cognitive change, frontotemporal dementia and MND MND Association. This booklet contains information on cognitive and behavioural change and dementia, and practical tips on management [last revised March 2022]
International MND meetings
ENCALS (European Network to Cure ALS) – annually in May/June
MND Association International Symposium on ALS/MND – annually in December
The Gordon Aikman Scholarship
Useful links
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- Euan MacDonald Centre for MND Research
- MND-SMART clinical trial
- MND Scotland
- Motor Neurone Disease Association
- My Name’5 Doddie Foundation
- Royal College of Nursing: support in your care for people living with motor neurone disease
- Anticipatory Care Planning Toolkit (Health Improvement Scotland)
- Speak:Unique: Voicebanking solutions for all speech needs
- Treatment Trials information on the MND Association website